Some scientific papers recently appeared defining, moreover, the latter as follows: “Duchenne muscular dystrophy remains an untreatable genetic disease that severely limits mobility and life expectancy in affected children” (6). Therefore, there is a conjunction of publications to strongly affirm the inhuman and irremediable character of such diseases, such a notion of incurability being able to justify some legal prenatal preventions, authorizing medical Inhibitors,research,lifescience,medical terminations of pregnancy (7). On the other hand, if we look at the risk of

latent eugenism, there is rare mention about one of the most important aspects of this question, i.e., the opinion of the patient himself, in respect of the first rule of the Law defined by the Nuremberg code to avoid the repetition of barbaric abuse, of recent memories: “The voluntary consent of the human subject is absolutely essential. This means that the Inhibitors,research,lifescience,medical person involved should

have legal capacity to give consent; should be so situated as to be able to exercise free power of choice, without Inhibitors,research,lifescience,medical the intervention of any element of force, fraud, deceit, duress, over-reaching, or other ulterior form of constraint or coercion; …” (8). This individual informed consent rule was to be one of the founder principles of medical ethics. It is worthwhile mentioning the current reserves, also reported in the press by the French President of the National Ethics Consultation Committee (Comité Consultatif National d’Ethique – CCNE): “Dare we say: France sets up, step by step, a Health policy constantly coming closer and closer to Eugenics. We are not far from the ‘impasses’ in which one had begun to become involved Inhibitors,research,lifescience,medical at the end of the 19th Century making Science to tell who could and Inhibitors,research,lifescience,medical who could not live (…) There is always a moment when politics takes Science at its word in order to transform Society to the motive that Science tells the truth …” (9). The basic differences become clear, upon the evidence, in the relationships Society-Science-Medicine,

regarding the current ideological tendencies, particularly those concerning the place that should be reserved in Society for physical ONX-0914 mw misfits (10). When attention is much being focused on cases of Muscular Dystrophy (MD), those currently in the news, legitimate to know if the truth of their very conditions is well perceived by those referring to their characteristics as inhuman, unbearable. On this very topic, substantial experience has been gained by the “Unité de Réadaptation et de Recherche Clinique” (URRC), in Poitiers, France, probably more than most. Indeed, the main goal upon which URRC has focused over the last 30 years has been precisely that of relieving patients of the constraints imposed upon them by the disorder, a priori incurable.